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What is Shinerama?
Shinerama is Canada's largest post-secondary school fundraiser. Each September over 35,000 students go out into their communities and raise money through shining cars, shoes, bikes, BBQs and candy sales. It has become one of the Canadian Cystic Fibrosis Foundations largest and most successful campaigns.
In 2010, 35,000 students like you at 60 university and college campuses across Canada rasied $1 million for the first time for cystic fibrosis research. It started at Western Regional School of Nursing in 1973. Last year WRSON raised $4100 dollars. This year we want to go above and beyond and last years total. This years goal is $8000 dollars.
Since 1964, Shinerama has raised over $21.5 million dollars in support of Cystic Fibrosis research!
What is Cystic Fibrosis?
Cystic fibrosis (CF) is the most common, fatal genetic disease affecting Canadian children and young adults. There is no cure for cystic fibrosis. CF is a multi-organ disease, primarily affecting the lungs and digestive system. A build-up of think mucus in the lungs causes severe breathing problems.
One child in every 3,600 children in Canada have CF. Because it is genetic there is nothing the child can do the prevent the disease. from developing. A number of treatments, from medications and physiotherapy to improve nutrition may help treat or reduce symptoms related to cystic fibrosis. However, there is still NO CURE.
A cure is near and with your help, takes us one step closer to helping all those Canadians who have cystic fibrosis.
The Signs and Symptoms of CF
What are the signs and symptoms of CF?
- difficulty breathing;
- constant cough which expels thick mucus;
- excessive appetite, with weight loss;
- bowel disturbances;
- skin which tastas salty;
- repeated or prolong bouts of pneumonia;
- failure to thrive
How is CF Diagnosed?
CF may be diagnosed by many different types of testing, including newborn screening, sweat testing or genetic testing.
How is CF Treated?
CF has no cure. However, treatments have greatly improved in recent years. The goals of CF treatment are to:
- prevent and control lung infection;
- loosen and remove thick, sticky muscus from the lungs;
- prevent or treat blockages in the intestines;
- provide enough nutrition;
- prevent dehydration
Chest Physical Therapy (CPT), also called chest clapping or percussion. It involves pounding your chest and back over and over with your hands or a device to loosen the mucus from your lungs so that you can cough it up
Aerobic Exercise, makes you breathe harder to help loosen the mucus in your airways so you can cough it up. Exercise also helps improve your overall physical condition.
Medicines, could include antibiotics, anti-inflammatory medicines, bronchodilators or muscus-thinning medicines. These medicines help treat or prevent lung infections, reduce swelling, open up the airways and thin mucus.
How does CF Affect Daily Life?
For Canadians with CF, life includes a daily routine of physical therapy, enzymes to suppliment a high protien diet and periodic visits to a CF clinic. Otherwise, most Canadians with CF lead normal lives, for many years, in terms of education, physical activity and social relationships. Eventually, however, lung diseases places increasing limits on daily life.
Thanks to advances in research and clinical care, growing numbers of children with CF are surviving into adulthood. In 1960, when Cystic Fibrosis Canada was founded, a child born with cystic fibrosis rarely lived four years. The median age of survival of Canadians with CF has reached its highest point ever, 37 years of age. This means that Canadians with CF now have a 50% chance of liviing beyond the age of 37. While this is positive news, the need for a cure is crucial for the 50% who won't reach the age of 37.
Is There a Cure?
As yet, there is no known cure for CF, but there is real hope. Comprehensive treatment programs have dramatically extended the life expectancy of persons with CF and many are living into their 20s, 30s and beyond.
Recent years have seen remarkable progress in CF research. Since 1989 when Canadian researchers discovered the gene responsible for CF, global research to find a cure for the disease has brought us closer and closer to a solution.
The astonishing pace of CF science suggests that there is good reason to feel optimistic about the future.